10 Oct 2017
Just completed my latest check up yesterday and I’m happy to report that I’m still on the happy path towards remission. T3 is sitting at 114, T4 at 1.3, and TSH is now 3.23 – all within the ‘normal’ range. That makes 3 consecutive tests now and I finally got the go ahead to reduce my methimazole from 5 mg a day to 2.5 mg. Woo-hoo! Doc believes that I can probably remain on low dose indefinitely but I’m still pushing for zero.
Next challenge – finding an endocrinologist near my new home in FL with the same conservative mindset to treatment!
1 Aug 2017
Sorry for the late update but have been busy with life.
I had my follow-up blood test back on the 10th of July and received my results a few days later. They only measured my TSH levels and the results are good, assuming that my T3 and T4 are also continuing to be in the ‘normal’ range. My TSH numbers this time out was 2.6, smack in the middle of the 0.4 to 4.5 range. That’s an improvement from my April test where I had a reading of 0.7. I’m still on 5 mg of methimazole, which I hope I can get off in the near future. My next appointment with my endocrinologist will be in Oct. Fingers-crossed for reaching remission soon!
12 April 2017
My thyroid readings are finally all showing in the ‘normal’ range! For now, the doctor wants to keep me on the 5 mg of methimazole and repeat the blood test in another 3 months.
TSH 0.70 (0.40-4.50)
Free T4 1.3 (0.8-1.8)
Total T3 121 (76-181)
Smiling ear to ear!
6 March 2017
Where has the time gone? Long story short, making progress with 2 of 3 measures now testing within the normal range:
- T3 is at 139.1 ng/dL (range is 80-204)
- Free T4 is at 1.34 ng/dL(range is 0.8 – 1.8)
I’m still showing that I’m considerably hyperthyroidic from a numbers perspective with a TSH still measuring a very low 0.016 ulU/mL (range is 0.35 – 4.5). The big issue with this number is that we have no way of knowing what my reading was prior to being diagnosed as having Graves’ so all we are doing is managing around a low number in trying to get me to be in range without really knowing if my ‘normal’ range could already be a low number.
Overall, still doing well and we’ll see if numbers will further improve at my next check up in April.
08 October 2016
So I had another follow-up visit with my endocrinologist last month and things look to be settling down a bit on the reduced dose of methimazole (5 mg daily). Free T4 measured at the upper bound of ‘normal’ at 1.8 ng/dL, however, TSH is still way below at 0.01 mlU/L. That compares to 3.9 and 0.02, respectively, back in July.
Not sure how much these numbers truly mean to me as I’m feeling pretty normal despite all these swings. Metabolically, I can feel the effects of the methimazole as it was causing me to put on extra weight when I was at 10 mg a day. At the lower dose, I’ve been holding steady at my pre-Grave’s weight, although it would have been great if I could have kept half my losses at the peak of my episode. All in all, I suppose my body knows what my norm is and I’m fine with that.
Next appointment is at the beginning of the new year.
Ciao for now!
Just got my latest labs and my counts are showing that I’m hyper once again. TSH is back to 0.02 and Free T4 is 3.9. As a result, my doc is putting me back on 10 mg of methimazole daily. I’m going to try and see if he will agree to 5 mg a day instead as the 10 mg got me to being hypo. Since I being off the prescription, I did manage to drop 10 lb. over the last 6 wks and I have noticed that my hands have been feeling warmer as they normally have been before the methimazole. If I have to stay at 10 mg, I think I have to start a new exercise regimen and do something aerobic on a more regular basis to keep the weight in check.
This is pretty disheartening and a setback for trying to reach remission. But despite all of this, I’m still feeling rather normal and it hasn’t really slowed me down from doing my normal routine, knock on wood. I’ll have another follow-up in 6 wks time but for now, I’m just going to enjoy a long vacation starting this weekend (Alaskan cruise, Vancouver and then Seattle).
15 June 2016
The latest labs are in and I have no right to be functional. TSH is at 62.0!!! Yes, you read that right, 62, which means I should be in a thyroid storm.
What’s a thyroid storm? If what I’m finding online is correct, it’s an acute, life-threatening condition characterized with high levels of thyroid hormones. Symptoms include hypertension (nope, blood pressure 110/72), tachycardia (heart rate over 100, nope, 68 bpm), fever (nope, not running a fever), and abnormalities of the neurological and gastro intestinal systems (you may have me there on the neurological side but I’m not experiencing any problems with #2, if you know what I mean).
I have no explanation for how and why I’m feeling ok in spite of my completely whacked TSH levels. I just very thankful that my body is holding up as well as it has and hope it will continue to do so for the foreseeable future. One of my close friends affectionately calls me a ‘rock’ but sometimes I wonder if she is referring to the object between my ears or because I’m tolerant to extremes (not bothered by cold or hot, generally high tolerance to pain – see reference to object between the ears, etc).
As predicted, I’ve been notified to stay off the methimazole and get another test in a month and a half’s time. The challenge here is that is just about when I will be off for a 2 week vacation with mom, cruising down the coast of Alaska to Vancouver, with stays in Vancouver and Seattle before returning home. More than likely, I will do another test before leaving and then prepare a medical kit of sorts to address whichever condition I may be in at the time. Hopefully, I will not need anything and stay symptom free as I am now.
Life is so interesting and unpredictable. The journey continues!